Saturday, January 2, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Jim Strieter says:

    I just watched Dateline and saw your 2 beautiful children. I always tell my friends and customers Never give up hope, never. I would like to send you a DVD of something that is so easy to use, extremely safe, and stops 99.999% viruses, and bacteria from multiplying that cause diseases such as Alzheimers, acid reflux, bird flu, swine flu, childrens diseases, diseases to organs, cancers, fatigues, Leichmaniasis, MRSA, SARS, MS Also liver and cholesterol problems. This product doesn’t cure or heal any disease but it renders the bacteria, virus harmless, thereby terminating reproduction. I take 2 teaspoon fulls twice a day. It’s as safe as water. I also use it in my eyes, my nose, ears, any part of the skin. no problem. I do need a mailing address.

    NEVER GIVE UP HOPE! Just because people say there is no cure doesn’t mean that is true. Keep pursuing!
    Jim

  2. Paula Doan says:

    Dear Hempel Family,
    I just finished watching the Dateline special and am sitting here in tears praying and wishing the best for your daughters.
    As a mom of 2 kids, a son 12 and daughter 9, and a Registered Nurse, I cannot imagine what you have gone through the past few years. The amount of dedication you as parents have put into the research and quest of finding a cure for your daughters – there are not words to describe your actions. It’s naturally what all parents should do, as our children are such gifts to us, but I just wanted to say how proud I am of you for doing the work – going all the way…the FDA…that is commendable to say the least. As an RN, I don’t know that I’d have the energy and tenacity to climb that ladder, but excellent thinking and will on your part to go for it. My brother in law is a biomedical engineer with Johnson & Johnson but I’m not even sure I would have thought to go to them. Your relentless spirit and moves on your daughters part touches all our hearts. I wish you the best and will post your blog to my favorites and follow the girls progress with the hopes of future positive updates and positive reports of decreased cholesterol levels.

    Hugs to you all and know that we’re praying for you here in Dublin, OH.

    Sincerely,
    Paula Doan, Mom & RN

  3. Stacey says:

    I just watched your story on Dateline from my sons room at Duke Hospital’s Pediatric Bone Marrow Transplant unit. He just recently received a umbilical cord blood transplant for a rare and fatal genetic condition-metachromatic luekodystrophy. It is not a cure it just buys him a little more time before the regression. He was diagnosed because I also have a 2 and a half year old with the same condition. The disease has progressed to far for the transplant to benefit him. While our kids dont have the same condition, they are very similar and I know your pain. Please know that I will keep your family in my prayers. I hope that the treatment will work for your girls.

    Stacey
    http://www.caringbridge.org/visit/thomasjoseph

  4. Lisa Reed says:

    I just saw your story on Dateline. First and foremost your daughters are beautiful! I am awed by your families strength, compassion, and vigilance. You are an inspiration. I will pray for the 4 of you and best wishes for the future.

    Lisa

  5. John H says:

    As a father, I find myself crying watching your story on Dateline. I admire the way you deal with such adversity. Stay strong! Nothing but positive thoughts sent your way. I wish you all the success with all your efforts.

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