Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
i am from the other side of the world but my heart reaches out to your family and to your brave girls. continue to give each other the strength and love to fight this battle..and we’ll continue to pray and hope for the cure.
God Bless you Addi, Cassi, Hugh and Chris
good luck to your journey! the girls are precious…you are lucky to have each other ♥
I just watched the latest video about cyclodextrin. I continue to pray for all of you and the doctors and am excited about this new treatment. I pray sooooo hard that it will help save you sweet girls. You two and your mommy and daddy are always in my heart and thoughts. I am so inspired by your amazing spirt.
I love you all!
Dear Addi and Cassi,
You are very close to our hearts, we cherish the many special moments shared and look forward to many more. Because of you and the tenacity of your loving parents so many children with rare diseases will realize their dreams. You have been blessed with a mom and dad gifted with incredible courage, patience and dedication not only to find a cure for NPC but to unravel the mystery of genetic and neurological disorders. At five years of age you have already made a difference in the world and touched millions of people. Thank you and God bless you. Annie and JD
I read your story in The Wall Street Journal recently. As a mom of two sets of twins – it was impossible to remain unmoved by your journey to help your gorgeous daughters.
From my family to yours – here comes a wish for your success in beating this illness.