Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
addie and cassie i wish you both quick recovery and may you both re-write medical history in the world!!…to mum and dad this is definately no doubt the most trying time in your marriage but stedafastness and good sprit will see you through this by the grace of God this shall pass.take care of yourslves….;….
My daughter has a lot of the symptoms your daughters have.They have been trying for about 10 years to figure out what she has with no results.she gets worse every year.I would like to speak to you some how to find more out about npc.
Thank you Bernie Guntow
Your beautiful girls and their story caught my attention and I hope Cyclodextrin has given you some hope in their health! God Bless !
You guys hang in there, miracles do happen, I have experienced several with my son. You guys are real fighters. Wishing the both of you the best.
You girls are so beautiful and so strong! Stick together and know that SO many people are on your side! We’ll keep you in our prayers!