Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
My thoughts and wishes go out to your 2 adorable girls, and the rest of your family.
Your children are simply beautiful and I will be sending good thoughts everyday. Keep on fighting— your site is so informative and so well-organized.
Here’s hoping ***and wishing*** a cure or reversal is found.
As a mother of 4 year old twin girls, I know the special beauty of two. I can’t imagine your situation but I am humbled by your courage. My girls and I now say a special prayer for Addi and Cassi every night at bedtime, as they say \from twins to twins\.
Beautiful little girls… saying a prayer for you all.
God bless you
Sandy
Oh, how I pray this will be THE answer! I applaud your tenacity, Chris, and look forward to hearing that these precious twins have a reversal of their disease!
My own wonderful twin sister has a similar disease, PPA, which is usually misdiagnosed as early alzheimers. I have sent this information to her Dr in Chicago as well!