Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
It’s oft said that raindrops are tears without pain…so be it, I can’t possibly know your pain but every time I feel the wetness of a raindrop fall against my cheek, I shall think of your beautiful twins, and your own pain as parents and my heart shall swell with grief and love for all of you as a family, and as a mother. God bless you and your dear sweet family. I wish and pray for the miracle you are seeking, yet not to miss a single ‘miraculous moment’ along the way. Hugs and love, Debi
Your girls are beautiful! They are fortunate to have dedicated parents. We will keep them in our prayers and spread your story to all who will listen.
May God Bless
My thoughts and prayers are with you. I just read the article on ABCNews.com. Your beautiful girls are blessed to have such wonderful dedicated parents. My god be with you. I pray your research finds help for Addi and Cassi.
I also read the WSJ article. I’m amazed at what you have been able to do. The connections that were made by your effort will no doubt benefit others who are fighting deseases. I wish your girls the best outcomes with the cyclodextrin tx. And hope these notes give you strength.
As i sat here and read the WSJ article I cound’t help by the end to find it very difficult to finish as it is very hard to read through tears and wear glasses. My oldest daughter is named Cassidy, she’s 11, and I was extremely moved by your absoulute brilliance in trying to link different medical research to help your daughters. I am going home this evening to show my family your website and get involved in any we can. i will be in contact soon. God Bless.
Dan Horrigan