Saturday, January 2, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Sonja Tusar says:

    Another miracle yet to happen.

    I’ve just finished watching the show “The Doctors”, and I’m deeply moved and happy and sad at the same time. As far as I’m concerned, much needed miracle is granted. You’ve got your first miricle, the two adorable girls, Addi&Cassi. So despite everything that had already happened and will happen, truly enjoy in every second of Your Miracle. Stay positive, stay strong for the two of them, they need you. I believe you’ll be rewarded, one way or another. Best of >>anything you need

  2. Carla says:

    Aloha Chris & Hugh,
    Beautiful job on the “Genes” video. Loved it. Spoke to Gina–sounds like you guys are onto something big. I am sending you a BIG KAHUNA wish for 2009–
    I wish you MANY beautiful & touching moments with your daughters, strength to pull you through the tough hours, and a CURE to help Addi & Cassi and others afflicted with genetic disorders.
    Big big love & aloha,
    Carla

  3. Gillian Quinn says:

    We have twins – boy and girl – our daughter was diagnosed with Neurofibromatosis 1 (no cure) at 12 months she is now 22 months, she is going through chemo and is now blind in one eye due to a brain tumor. I send all my love and wishes to your girls and will pray for a cure. They look beautiful and must bring you so much joy. I am very hopeful that stem cell research will help you, and am encouraged that Obama is pushing for further research,
    We send our love and prayers to you,
    Gillian
    xxx

  4. Rebecca says:

    Sending you the most positive wishes for a cure and a speedy recovery for your beautiful girls…

  5. Meg Heinicke says:

    As a parent I can’t help but be moved by this story. I send my heartfelt best wishes for your family and the hope that you find everything that you seek. Bless you and your amazing girls.

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