Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
i’m so proud for you both god bless you i saw you on the doctors all arabs are with you we pray for you
Hi there! i was so moved by your story after watching you guys on the doctors show. May God bless you and give you strength, hope, courage and patience to fight this disease. Never never never give up, even if it means researching enough yourselves to discover the treatment that doctors couldnt find. Have you watched the movie Lorenzo’s oil? im no expert but that kid had a terminal disease related to lipids being deteriorated around the nerve cells, melanin n stuff and his parents discovered the cure was in oil.please watch it, coz watching you guys reminded me of that story of hope, fear, joy and fatith….God says behind every huge problem in your life lies a story of growth and feeling you are closer to him….your life is not an accident, God has it all planned out for you so have faith in him and he will never leave you….
also a Great book by Rick Warren will surely transform your lives if you read it in moments of pain and suffering, if you are christian of course….its called “the purpose driven life”
Your daughters are so wonderfully cute and adorable! May you all be blessed as a family forever…
all my prayers are with you…
Sincerely
Nesrine
i am a person who saw you on the Doctors program i am from Jordan .. Middle east .. not only i want to wish you all the best and cure for your daughters but i also want to pray for god to keep your faith growing. i am so proud of the way you reacted to this and the love you have to each other .. this is what God wants from us .. love and faith in Him.
just to let you know that my thoughts and prayers are with you and your lovley children…my daughter has an arachnoid cyst that was partially removed but still resides in her brain causing the occasional seizure…anyway i was and am here for her but i bow down to the strength that you and your husband have and i pray with all my heart that a cure is found for your lovley daughters
Hey, we are dany and katy newly married. We saw you on the doctors tv show and we would like to tell you that you are so sweet. We pray God for you and your parents and hope all your dreams will come true.