Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
As a mother of 4 girls & 6 grandchildren I just want to say God Bless You both and I Pray that the medicine that the girls are taking will help. You have 2 beautiful and precious little girls. I pray God will answer your prayers.
Love,
The Barnett Family
Best wishes to you all! Our thoughts and prayers are with you always. Addi and Cassi you are absolutely precious and your parents are as well. Much Love to you all!!!!
Love,
The Jones Family
I wish the best for your entire family and will keep your children in my thoughts and prayers.
All the best to you, and don’t give up!
S.Butler
first of all i want to say i believe that we all share the same purpose in this plane of existence and that is to teach and be taught. sometimes we are the teacher and sometimes we are the student and we can go from one to the other in a blink of an eye. this is what makes all life precious and valueable. Addi and Cassi are soo precious and amazing and u and ur husband are not the only fortunate ones to be touched by these beautiful girls. i know i am fortunate too. it was by chance that i turned on the show ‘the drs’ i’ve never watched before today and my attention was immediately captured. i had not heard most of what was being talked about except that it was about twin sisters with childhood alzheimer’s. intrigued to find out exactly what this was about i google searched childhood alzheimer’s and was brought to your website. now while i dont have any children i am the primary caregiver to my mother and over the past 3 years her life has been changed in ways never imagined starting with a botched knee replacement that led to an MRSA infection which then she developed a klebsiella infection and then last year she went into acute renal failure. it was after the acute renal failure that her memory had sudden marked changes and after reading your bolg about curcumin a new fire was lit i dont know if it will be of any use to my mother(her father died of complications due to alzheimers)but it is possible that it might be very beneficial and if not for your lovely daughters i would have never had this oppurtunity to help my mother. it is a great gift to affect positive change in another’s life and i am terribly grateful to Addi Cassi you and your husband for the gift thank you so much~~~my deepest wishes for all the best~~~XOXOXO~~~alabaster
Your daughters are beautiful little girls. I am praying for them and you.