Saturday, January 2, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Donna von Halle says:

    Dear Chris,
    Our paths crossed briefly years ago when working on a bi-coastal account, ATV, and have been sent your newsletters by former colleagues at Spark.

    I was struck by the Doctors piece and have tremendous admiration for your strength and resolve to find a cure for this tragic disease.

    We will keep you in our thoughts and prayers.
    Donna (Ruane) von Halle,
    (Mom of Carly & Ben, twins, age 6)

    p.s. I’m heading out to the yarn store tomorrow to knit some caps.

  2. Brandi Crubaugh says:

    Hello,

    Brandi Crubaugh here again. I think about your family every day. I am contstantly spreading the word about Addi and Cassi’s awful condition through email, myspace, and also at work. I am very anxious to hear updates and see the girls grow and progress. I will continue to pray for your family.

    Lots of Love,
    Brandi, Robbie, Haven(2), and Madison(21months)

  3. Mark Paradis says:

    Hi Hugh and Christine, Our thoughts, wishes, and prayers continue for your family. Your efforts and faith have touched so many families. There is hope and continue your strength.

    Mark Paradis and Laura Deahl
    Allstate Insurance

  4. I have identical twin girls, and my mother told me about the piece on the Drs. As a nurse i have specialized in geriatrics and alzheimer’s. Your story is very touching and hits very close to home in the two areas of my life that i focus on alot. My girls and Alzheimers. God Bless you, your family and all the people that your story touches. You girls are very strong and Mom and dad, you are soo strong and I admire you and your strength, and your creativity on getting the message out there about this terrible disease. My wish is for your family to live everyday to the fullest and have no regrets at the end of the day. I hope that your story reaches the people that can make a difference in your life and the others suffering from neurological diseases. My family will keep you in our prayers.

  5. Pam Gabrielson says:

    I am a friend of your aunt Janets. So we know all of you.Please know that we pray for you all. God Bless you all and try and stay strong. The piece on The Doctors was very good. Hopefully something will come out of it. Love to you and your family.

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