Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I just saw you on The Drs and I had to come visit your website. I have a 4 month old baby girl and I can’t even imagine what it would be like to go through what you have. I hope you help find a cure!
My prayers are with you and your family.. I hope that god answers your prayers.. And just remember the greatest gift in life is the time you have together.. iwill be a long time if I can help… God Bless You!!!
I just watched the doctors show that your cute little girls were on. This was the first time I had heard of this disease. I just want you to know I will be praying for your family. Remember to never give up hope! Miracles can happen!
I am a mother of 3 and a grandmother of 9 and I cannot even begin to imagine what you are going through. If my twin grandsons were going through this, I know I would be devestated. I can promise you I will be praying for you and your absolutely beautiful little girls as if they were my very own. I do have a question for you. Have you along with your medical drs. ever thought of going to a MD/Natural Medicine? I was just reading about the nutrient called nicotinic acid and its brain-boosting powers. One study tested its effects on 815 people for 4 years (J Neurol Neurosurg Psychiatry). Those who consumed the most nicotinic acid were 80% less likely to get Alzheimer’s and also boost your IQ. Also an iodine deficiency triggers brain diseases. Our diets are high in iodine blockers! Simply taking an iodine supplement can reverse this brain failing disease. The last thing I learned was that (NPH), normal pressre hydrocephalus, which is the build up of spinal fluid. This can be cured instantly by draining the fluid from the spine. As a grandma, I would want my children to go a million extra miles for my grandchildren. I would want to know everything that was available to me. I know you have done that, but thought I would pass this on just in case. Again I will be praying for a cure for Addie and Cassie and for you to have a peace that passes all understanding. May God Bless you through this valley in your life. You are such a beautiful family…. Karin
I saw your story on the Dr’s show the other day. The girls are adorable! My thoughts and prayers are with you and I hope a cure can be found!
Alessiah