Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I just saw your segment on the Doctors show today and was instantly moved by your story. I am a mother of 2 daughters (ages 10 and 4) and have a twin sister myself. Both my sister and I just lost our father to Huntington’s Disease last year and are both at risk for inheriting this neurological disease.
I know the bond between sisters, especially twin sisters, so I am even more saddened but comforted by your story. Your daughters have each other and this can bring comfort to them both through their difficult experiences. I will pray for your family and for your amazing daughters that you find a cure and find strength and happiness through these difficult times. Your story truly moved me and defined my own reality. May God watch over and bless your family.
Don’t give up hope!
Eileen
Like many, I watched your story on The Dr.s today. Being a nurse I specialize in caring for people with Alzheimer’s and see first hand the effect’s of this debilitating disease on everyone involved. It is mind boggling to me that this is happenening to children around the world. I thank you for bringing your story to national television and sharing your most precious memories and experiences with all of us. I quickly went to your website to read everything I could. Your girls could not have picked better parents to love and care for them- they truly are beautiful. God Bless all of you. You will be in my thoughts and prayers. Jennifer
I saw your story on TV today and was moved to tears. Addi and Cassi are beautiful girls and seem very happy. I had never even heard of this disease and my heart broke for you but the hope and strenth you showed was inspirational. Your family will be in my prayers and thank you so much for sharing your story. One day, there will be a cure.
with love and hope,
Cindy
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I watched your beautiful segment on “The Dr.’s” today and please know how truly moving Addie and Cassie’s story is. You have provided so much hope to everybody suffering from a disease that seems that a cure may not be possible. Your strength, compassion, and courage is admirable, please never lose hope and keep fighting. Thank you for sharing your story, your beautiful daughters are in my thoughts and prayers. I have faith that God will bring your entire family the strength to carry on and the doctors to find the cure.
With Love,
Adrienne
Hello,
my prayers are with you both for Addi and Cassi,I saw your story on the new Dr show,I will continue to pray that either God will heal your little ones miraculously or that God will provide a cure in the form of a new medication
Hope that all is well,
Love,
Mary L Eviston