Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
My wish is that knowledge of this condition spreads and that more and more support and research can be done to work towards a cure. And I can only hope that every child who deals with the obstacles of this disorder ahve parents like you, Hugh and Chris. I watched the two of you on “The Doctors” today and you seem like truly marvelous people, and I’m sure that your daughters are thankful for you. I will continue to pray for you and your family, as I do what I can to support your cause. Every child deserves to have a childhood that they can look back on and laugh about for all the silly things that they have done, learn from mistakes made, and thank God for all the blessings they have been given.
I saw Addie and Cassies story on “The Doctors” show and was moved to tears. I am a mother of 4 and could not imagine. Your girls are beautiful and so lucky to have such strong parents. I am motivated to spread the word. I will be posting links everywhere; Facebook, Youtube, Myspace……
Your family is in my families prayer. I cure will come and dont ever lose hope.
Love,
Kim & Family
I wish that a cure is found to help these children god blees them all
I just finished watching your story on “The Doctors” and I was moved greatly. Your strength and courage has really touched my heart. I’m 23 and have been dealing with a rare kidney disease that is not treatable, since I was 12. Your story has given me the motivation to fight back and try to find a cure after I had given up. I wish you all the best and hope you’re able to find a cure.
PS Your daughters are gorgeous.
Love Nicole
I saw your family on the Drs. We are praying for a solution for your sweet girls.