Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I wanted you to know though I caught only part of your story on the “DRs” show I am sorry to hear what is going on with your girls. I am wondering, have you ever thought of visiting a chiropractor? I have recently learned about this wonderful way to change the course of disease and reverse it. I have also learned about the devastating affect drugs can have on ones system. I have been disabled my entire life and on drugs of all sorts until I found a chiropractor through my church. I have also witnessed the change it has had on children of the same age group that are patients. It is amazing! I will pray that you are find the answers you are looking for….God Bless you and your family.
I have only heard of somone having NPD once since today, that was in 1973 when my youngest brother “Brian” was born. Today I watched your family on The Drs.I was so blessed to have my brother in my life for 26 yrs. My hope for you is that a cure will be created very soon. My daughter “Brianna” (named after her uncle)and I wish you the very best.
Sincerely, Christine
I saw you all on The Doctors this morning 9-22-08 and all I wanted to do was reach through the TV and hold and kiss your little girls. I have a 3 yr old named Sabrina. I cannot image all that is happening to you and I wanted to let you know you are in my prayers. I am SO SO sorry for everything. If you are ever needing to vent please email me. All I could do was tear up watching your story. Your girls are so beautiful so please hang in there. I wish I could give you all the $ in the world to help. Know this that you have touched my heart in many ways.
God bless and please hug and kiss your girls, husband and yourself. I wish I lived close to help.
Denise & Sabrina
while living in hawaii, i was introduced to “noni juice”. it has an adaptogenic enzyme in it that works to right the enzymes in our bodies that are not acting properly. for myself, taking it daily helped avoid having surgery for a nerve injury to my thoracic nerve. i drank the juice and wrapped the heated leaves on my shoulder/neck/back, where the pain was most intense. the relief was marked. Dr. Neil Solomon, formerly with the Maryland Dept. of Health and Mental Hygiene, wrote a book titled “The Noni Phenomenon”. in it he reviewed over 10,000 case studies. it may offer another avenue to you and the vital research you are living daily. (i do know the juice should not be pasteurized – the heat kills the enzyme. i know a lady from molokai who makes the juice and i would share her info with you, should you be interested). it will be my joy to pray for you and your family as you live life day to day, for strength for each day and know we have the promise of faith and hope. it is crucial to not be alone in life. thank you for sharing on the show, “the doctors”. miriam
I wish for nothing short of a complete and total cure. And for a disease that effects so few children, it’s such a drastic disease. In a country where we can fly people to outter space, I wish we can someday cure diseases which affect all of our little ones. I wish for not only a cure, but a speedy one at that! You have such a special family and deserve such a cure!