Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I am not sending a wish because I believe God can heal. I prayed for your girls as I do for my Grandmother who doesn’t know who I am any longer. She is in her early 70’s and is a blessing either way. She has had it for almost 10 years.
Your kids are so so blessed to have the two of you for parents and if you ever need help in west palm beach, please ask. I have seizures and cannot drive and am only 29 but I found your smiles and your girls smiles so uplifting. Thank you for continuing to try and for never giving up. I saw your story on The DRs show. Thank you again, you touched my heart and I am sure you touched others. Please know you are never alone 🙂
Addi and Cassi are such beautiful little girls. I saw the show on the girl on “The Dr.’s”. It is such a shame that such small human beings have to go through such treturous ordeals. I pray that these little girls get better and that medical advances can be made from the experiments and feedback of these girls. Good luck to all of you and best wishes!
♥Kari Largent
I don’t have much to offer to help, but as a parent of a child with down syndrome, I know it can be really hard when u find out that your child is not as healthy as one would like, but I know your girls will be okay, and keep having hope and faith in them, and never give up. Be strong for them becuase as you may know that will make them strong. Your girls are a blessing no matter what.They are beautiful and keep fighting for a cure they will find something to help your little angels!
i wish and pray you fine a cure soon they are so beautiful
I just wanted to say that I really was amazed at both of yours positive attitude and strength to fight this everyday. May god bless you and your daughters and may your family be one of the most happy ones.
I would also suggest that you also research into using turmeric – its a yellow color spice used commonly in indian cooking. It has highly anti-inflamatory qualities. Research shows that India has one of the lowest rates of demetia (and cancers) and this is one of the spice that has to do with it.
Once again, I wish your family all the happiness in the world