Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
Just got through watching the episode of “The Drs”. An amazing story of you and your precious angels.
JUst wanted you to know that you are in our prayers here in Tennessee. I have two boys that are now 19 and 21. It just seems like yesterday they were 4 years old!
I believe in God’s miraculous healing powers and I pray for you today that God will give you the desires of your heart!
Be Blessed and we pray for a cure!
-The Oaks Family
Jasper, TN
I just watched Dr.’s and heard your story. I will pray for Addi, Cassi and the both of you. Having lost a grandmother in May 2008 to Alzheimer I understand the need and want to find a cure.
Your daughters are so very fortunate to have such loving and caring parents as the both of you. They are just beautiful.
Continue to be strong and keep fighting the fight.
With love and prayers,
Melissa Hobby
I just watched your story on The Doctors, and your girls are so adorable. My thoughts and prayers are with your family. I will hope that yall are able to find the miracle you are looking for.
I’m watching your story right now on The Dr’s and it breaks my heart. I am a nurse here in Michigan and have heard very little about this horrible disease. I just wanted to wish both of you the best of luck in the future. Both of you and your family are in my prayers.
My heart and prayers go to you and your beautiful family. My daughter has early onset juvenile NCL and so in a lot of ways I can relate to your struggles. I am a member of BDSRA but there are no other families here in Georgia that I am aware of.
God’s blessings,
Gwen