Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I just watched to Doctors program and I’m sitting here crying for a family I don’t even know. I’m so impressed by your wisdom, strength and energy. I feel that God placed Addi and Cassi with you both as parents because he knew how much you would be able to do for them. They’re so beautiful. I will pray every day for this horrible disease to be wiped out. And I will pray for you and your family to continue to “fight the good fight”. God bless you all.
I want to help! Is there anything a small town hospital pharmacist can do for you for your family?
Hugs and prayers,
Heidi Elzer
I just watched your story on Doctors TV and was amazed to find out that this disease affects children as well. I was never aware of this fact.
Many years ago, my aunt suffered from Dementia, which eventually led to her death. It was a very painful experiance for my whole family to watch her decline and not remember us.
Your daughters are so beautiful and so lucky to have such loving parents as you. I hope and pray that this will bring awareness to all and that someday soon there will be a cure for this terrible disease.
My heart and prayers go out to you and your lovely family.
Sincerely,
Laurie Roland
I just saw the segment on Doctors TV and your story really made its way to the core of my heart. Having a child just over a year ago, I am now able to relate to the STRONG, EVERLASTING love one feels for their children. I loved children and worked with Asperger’s children before I had my daughter, my heart pouring with love for them and helping the families in any way I could. I want to commend you for taking this travesty that his hit your family and turning it into a wonderful chance to educate others on the disease and search for a cure. Your daughters are beautiful little girls and I will pray each night for a cure to their illness and for your family.
I just watched your story of your beautiful little girls, Addie & Cassie and just wanted to say that my heart goes out to you. Having a grandmother and now my mother who has/is suffering from Dementia, I never knew that it could effect a child.
My prayers to you and those beautiful angels. Seeing them at the end of the segment brought me to tears. I will keep checking on their site in the hope that you reach your million goal.
Sincerely,
Darleen
My thoughts and prayers are with you and your family. God bless you.