Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
You have two very beautiful children and from looking at the pictures, they enjoy life even with their illness. I had never heard of this disease until today. I cant imagine what you are going through knowing that your children have this and the pain they must be going through. It makes people like us appreciate what we have in life and makes us realise there are others out there who are in much worse situations. Our thought and prayers are with you and your family. We wish for a cure to help your beautiful daughters and others out there with the same illness. God Bless!
Nicole, Brandon and Makayla
Thank you, Julie, and Stenger Family for your well wishes for the girls.
Love from the O’Connor Family (Jim’s daughter, Janet, Mark and James); knowing your dad Paul.
I have first hand experience with NPC-C as I loved and cared for a beautiful girl that had this disease. I wear a purple NNPC bracelet on my left wrist to keep her close to my heart and spread the news about the battle to get funds to find the cure. Teach the girls sign language. It helped us after she lost her ability to talk. She knew only the basics, Yes/ No / right on and I LOVE YOU, our ability to communicate never ended.
You all have my prayers with the belief we will find a cure.
God Bless.
I had to leave a message.My best friends little boy has neimann-pick and i seen ur message to them on his bebo! Its heartbreaking to know there are so many children who need help and we are helpless to give them it,at the moment anyways. Taylors mam and dad are both strong and they r gonna fight all the way for taylor as am i and everyone we know! We are fighting for not only taylor but all the neimann-pick sufferers! There will be a cure!! we will all make sure of that!!!
Hi Christine!
My dad just forwarded this to me and it is just so heartwrenching. I often ask how you are and hear all the updates from your dad to mine. I just wanted to send out my wishes to you and let you know you are in my thoughts and prayers….if you need anything or are in the city, please let me know. My husband is a hotel manager, so we can always offer you a room if you are here for any reason. All my love, Julie