Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
To your beautiful girls-
may god bless those two precious babies and watch over your family in this m0ot difficult time. To think that before today I had no idea NPC even existed! I have two children of my own, and I thank God for their health…my life will never be the same. what can I do to help? God help you and those beautiful girls.
After watching your story and reading the information on your website, our hearts go out to your Beautiful Girls. Your story hits very close to my Heart, everything you said is very similar to our Daughter Alexis. We lost Alexis at the tender age of 5 to Juvenile Tay-Sachs Disease September 14,2006. The symptoms that your daughters are experiencing are the same issues we were dealing with, the doctors wre puzzled.Alexis had a cord blood transplant at Duke, we were introduced to 2 young girls with Niemann Pick who were having the same procedure. The Medical community is working to try and save our kids from the Terrible Diseases and without HOPE we have nothing. I am blessed with memories of Alexis that can never be taken, she is watching over me reminding me not to give up. I wish you and your family the very best, we will be thinking of you and remember we have HOPE for a cure. Craig
http://www.caringbridge.org/visit/alexismarkowich
I just heard about your story and found the Good Morning America news video. My heart is breaking for you. I am losing my mother to a form of dementia, and each Mother’s day is full of emotions – joy for my own children mixed with new levels of grief for my mother. But the thought of your little girls following the same path is just so much more tragic. My thoughts and prayers are with you, may each day bring you some joy and closer to a cure. God Bless.
As the mother of three beautiful children, I can’t even imagine what you must be going through. When I saw your story, I was crying like a baby. No parent or child should have to suffer the way that you and your beautiful babies are. I have so much admiration for what you are trying to do for your daughters. A lot of people would just pity themselves and give up, but it’s people like you who make people pay attention to such horrible diseases and other terrible things that are afflicting our world. Please know that your family is in my prayers, and I will ask everyone I know to add you to their prayers as well. God bless your beautiful family, and may you find the answers you’re looking for very soon.
Dear Chris & Hugh:
Your beautiful children are in my thoughts & prayers. As parents we try EVERYTHING within our reach in order to help our loved ones. Please, visit the website above & give serious thought to give this a try. It has remarkable results, please do not dismiss it. I really care. (This is not a sales pitch at all) Cheryl Chappell (keep in touch & let me know the outcome)