Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
My thoughts and prayers are with you and your family. I am so glad you brought this disease to everyones attention this morning on GMA. My prayer is that we will find a cure to help your girls and others who are affected by this disease. I have a friend who has had Picks disease for about 4 years.
May God Bless You and Your Family.
I stumbled acrossed your story today on abc.com. As a mother of a 4 and 5 year old, I ache for what you’re going through. You’re girls are simply beautiful. You’re very lucky to have them. I cried as I scrolled through all the beautiful pictures of them. Our thoughts and prayers are with you and you search for a cure. May god bless your family.
Ed and Michelle DeBus
My thought and prayers are with your family.
Justine
I seen your story on GMA this morning and I had to send a message… MY thoughts and prayers are with your family. I try to believe that God only gives you what you can handle. I think that you and your husband have tremendous strenght and I will pray for you family to find the help that you need in this battle. God bless all of you.
Hello Addi, Cassi, Chris and Hugh. It was wonderful seeing all of you again in Reno last week, however briefly. I trust the restaurant fundraiser proved financially lucrative.
I watched your tearful video on Good Morning America. Communicating this disease to the masses will, hopefully, open more doors of support, awareness and research so a cure can be found while you are standing off this invader with your current drug efforts.
My prayers for a speedy cure are with you.
Love and Hugs
Suzanne (Denise’s mom)