Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
I get very emotional when I think of you PRECIOUS children! You see, I am an identical twin whose twin sister has been diagnosed with a related disease called Primary Progressive Aphasia. Like your parents, I refuse to give up! In researching PPA, I have read many reports on Picks Disease as well.
I have found some work done in Philadelphia by a wonderful researcher, Dr John Trojanowski, to be of great interest. You might find it helpful to check out his research as well.
Hi I am friends with your Aunt Imke, I sure wish you much happiness. I am praying for a cure for you. I hope you get 1 million wishes and more. God bless you and all those that have this rare condition. Mary Jackson
They are beautiful babies and I hope you find a cure for this disease. I send you all best wishes and love. Auntie Im
Here are two wishes for two beautiful little girls! May each day be special and filled with peaceful and happy moments. We wish that the cure for NPC is found and that you both live long and healthy lives.
You are both in our thoughts and prayers.
I wish you all a million beautiful moments that last forever in a million beautiful memories!