Saturday, January 2, 2021

Make A Wish For Addi and Cassi Today


Dandelion-Final

Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.”  We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching.  Thank you to everyone around the world who has posted on our Wishes Board.

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Comments

1,806 Responses to “Make A Wish For Addi and Cassi Today”
  1. Martina says:

    Happy Valentines Day girls!

    -Martina

  2. Frank Austin says:

    Addi and Cassi
    You are so beautiful now, and you will always be beautiful. I wish you both a long, happy life, full of the love you deserve.
    Frank

  3. Jennifer Dolder says:

    With your wonderful parents & all these good thoughts & prayers coming your way, we ARE going to beat this thing!! Both of my kids are working on CareCaps right now! Take care & may God bless you all.
    Sincerely,
    Jennifer

  4. Riki says:

    You are in my prayers! I submitted your website and info to the Oprah show, I hope they call you!
    Love Riki

  5. Frank Haywood says:

    My son was dying from Parkentonian Syndrom in the MSA catergory. In this country they gave up on him and sent him home to die. He found a treatment Hospital in China and after a two month stem cell treatment along with daily IV’S with drug cock tails he is again functioning without all the terrible side affects. The program is rigerous with full days of PT, OT, Accupuncture and I don’t know exactly what else. Many fear treatment in China but this particular Hospital is well known and has helped many Americans as well as other people throughout the world. Maybe it is not for you but I thought it was worth a try. My oldest daughter is a nurse and accompanied and cared for my son during the experience. If you thought there was some help I can put you in touch with them both. The state side doctors of my son are very supportive and amazed at his turn around and functioning. Doctors in general here down play China without knowing what can be done.

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