Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
Hello Beautiful little angels!!!! My prayers are with you and your family and I have all the hope in the world that a cure can be found for your disease!!!!!
Love,
A Loving Mother
God bless you and your family. You are in my prayers.
DEAR CHRIS & HUGH,
TO ADDI & CASSI I SAY HELLO AND I AM ROOTING FOR YOU AND YOUR PARENTS..
I AM A GRANDMOTHER OF 5 AND JUST BEFORE CHRISTMAS BECAME A GREAT GRANDMOTHER!! I CAN ONLY IMAGINE THE HEARTBREAK YOU ARE ENDURING.
CHILDREN, GRANDCHILDREN & GREAT GRANDCHILDREN ARE OUR MOST PRECIOUS GIFTS! I LOVE THEM ALL SO VERY MUCH AND CANNOT IMAGINE THE THOUGHT OF LOSING ONE OF THEM.
I AM DISABLED WITH FIBROMYALGIA, ALSO A CONDITION FOR WHICH THEIR IS NO CURE BUT IT IS NOT FATAL. EVERY DAY, I HAVE WIDESPREAD PAIN & FATIGUE AND MOST DAYS FROM NOON ON I AM BEDRIDDEN…
TIME SPENT WITH ANY OF OUR GRANDCHILDREN MAKES MY PHYSICAL SYMPTOMS MORE SEVERE YET THE EMOTIONAL JOY THEY BRING TO MY LIFE MAKES IT EVER SO SWEET!
YOUR POSITIVE ATTITUDE AND EXEMPLARY COURAGE IS TO BE COMMENDED.
THERE ARE VERY FEW PARENTS WHO WOULD CHANNEL THEIR GRIEF INTO ALERTING THE WORLD OF SUCH AN UNFAIR & SENSELESS TRAGEDY..
I HAD NEVER HEARD OF THIS UNTIL MY OLDEST SON NICK RECEIVED THE INFORMATION FROM ONE OF HIS PROFESSORS FROM U.C. BERKELEY.
I CAN ONLY HOPE AND PRAY THAT A CURE IS FOUND OR AT THE VERY MINIMUM, HELP IS FOUND TO REMOVE THE SUFFERING OF YOUR ADORABLE TWIN GIRLS..
I HAVE LOST A SON, BUT NOT UNTIL AGE 37, WHICH IS STILL WAY TO YOUNG, BUT TO THINK OF LOSING 2 BEAUTIFUL DAUGHTERD SO YOUNG AND SO PRECIOUS IS ALMOST BEYOND MY COMPREHENSION..
GOD’S WORK IS MYSTERIOUS AND FOR YOU TO TURN YOUR GRIEF AND ANGUISH AROUND TO WORK HARD FOR A CURE IS MOST INSPIRING.
ADDIE & CASSI, YOU ARE SO LUCKY TO HAVE YOUR LOVING PARENTS.
MY VERY BEST WISHES TO YOU ALL,
MARY ANN LEWIS
FRESNO, CA.
Hi Addi and Cassi!
My name is Kristin. Your grandma Bev is my aunt. She’s been keeping me up to date on what you’re doing and how things are going for both of you, and your wonderful parents too. I wanted to send you a wish today, but I also want you to know that I think about you EVERY day. You’re in my prayers, and I wish you all the best in the world. Love, Kristin
Such beautiful little lives-John was so proud of them and you both-Chris and Hugh. Thank you for sharing this with the rest of us. They are touching the lives of so many and teaching us at such tender ages, and making us feel with our hearts. Best wishes and many thoughts and prayers….Debby, Whistle Pig Saloon