Make A Wish For Addi and Cassi Today
Your support and encouragement helps us get through each day as we fight our battle against Niemann Pick Type C, the “Childhood Alzheimer’s.” We read all messages posted to our family and while we may not be able to respond to each message, your messages are very touching. Thank you to everyone around the world who has posted on our Wishes Board.
Just wanted to say I am thinking of your girls. May god bless them!
I am a 23 year old girl and i live half way around the world in dundee scotland. Your two little girls are so brave and are a true inspration to everyone who has this condition.They have trueley touched my heart. They contine to have my love ans support. kirsty xx
I just watched a programme on you and the girls in Austria. My heart really goes out to you and the family. Being parents you both are doing a marvellous job. Keep well and I am sure they will get well. They are just such awesome girls and so beautiful. God Bless!!
My heart goes out to everyone with a rare disease. Our neighbor’s son has Niemann Pick Type C, and it is heart-wrenching to see what he is going through. I hope and pray for a cure for this and all the other mysterious diseases.
Is there a standardized pin or bracelet we can wear to honor those who have rare diseases? I like the “ribbon/jean” design on the website, and I would love to buy a bulk of them to give to those around me to raise awareness.
Thank you for reading this, and God Bless….