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CNN – Dr. Sanjay Gupta Follows Addi & Cassi for 4 Years
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Hello! It was by accident that I came upon this website. I, too, have a child with a progressive neuromuscular disease for which there is no cure. My 5-y/o son, Jojo, has Spinal Muscular Atrophy. He never got to sit up, crawl, much less, stand up or walk. He is severely physically-handicapped, but his mind is sharp. I fully sympathize with you. Your daughters are so blessed to have you “fighting” with them and for them. You will be in my thoughts and prayers.
What beautiful girls. I know of a child that was very toxic in heavy metals especially aluminum. The testing by urine and blood did not show anything not until she had a hair analysis by a naturalpath did they figure her out and she was quite “alzheimer” like.The girl is fine today. Just a thought. God Bless you for all you have done for many many people.
Hello Chris and Hugh,
I came across your video on You Tube. My name is Mariarosa, I am 24 years old and have Niemann Pick Type B disease. Your perseverance has really touched my heart, I can’t imagine how difficult it must be for you guys. I am trully inspired by your daughters and I think what you have done is amazing. They are trully a gift and I wanted to thank you for puting this video together to remind people how precise life is. I will pray for your daughters and I hope all the best for you and your family. Thank you for the reminder of what is important in life and you guys have clearly inspiring millions. Thank you!!!!
That video is so full of love and I hope they can find a cure. I really really hope.
I did watch the program when you were on “the doctors”. It was broadcasting in Sweden to. And im from Sweden and did get very touch by your story. So God Bless you all. Hugs
I pray that everything will be ok. If everyone pulls together i have faith that it will be ok. Merry Christmas i hope it was wonderful. Your in my thoughts. God bless