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The Addi and Cassi Fund - Niemann Pick Type C
Treatments & Cures for Niemann Pick Type C – Childhood Alzheimer's
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The story of these two little beautiful girls truely touched my heart in ways you can only imagine… I working on spreading the word out on Myspace.com to my friends and family on there Myspace is popular and people spread things fast I’m hoping to get the word out to alot of people so they are aware of your illness and possably help you along with other young children like you two…
PS: You’re both in my prayers!!!
Sincerely,
Shaunda VanAlstine
September 22, 2008
Dear Chris & Hugh Hempel: I saw the story of your two beautiful daughters — (Addi & Cassi) — this afternoon on a “Doctor to Doctor” program here in Las Vegas. It immediately touch me, because my family lost our father, in 2004, to “The Long Good-Bye” of Alzheimers Disease. It was an 8-Year on-set, and I witnessed it “Up Close & Very Personal!” I admire, greatly, your loving, diligence (and creative intelligence) in pursuing all avenues for researching a cure — (including utilizing experimental drugs and natural / whole remedies). My mother and I went that route regarding my Father also — (as much as we were able to). However, my spirit was “pricked” today, because I didn’t hear of (on the tv program) any mention of Healing Prayer as a cure — (well, yes, “a miracle” was mentioned). However, I do believe so much in prayer, that I went, immediately, to the internet, “goggled-up” a prayer community to “back me up” in my prayers for Addi and Cassi! I didn’t want to just come to your website and say: “I’m praying for you!” — (and I AM!). I wanted to have a Cyberspace Community Prayer Chain, if you will, at my disposal. So, I “found” the Prayer Community called http://www.PrayAbout.com, this afternoon; joined it — and, immediately, posted a fervent, Prayer Request for your daughters!! If you go to that website (www.PrayAbout.com), you’ll see my prayer request with the following headline: “PRAYER-SNATCH 4-YEAR-OLD TWINS BACK FROM THE JAWS OF CHILDHOOD ALZHEIMERS DISEASE!” My User Name is: Prayer Dancer (Las Vegas). It was accepted and posted within the hour of my writing it! That is my contribution to the cure for Addi & Cassi!!
Believing God For A Creative Miracle,
Karen A. Surratt
Las Vegas, Nevada
Hi Addi and Cassi, you both are so cute and I can only hope and pray that you live the long and happy life you deserve. Your mommy and daddy must be so proud to have such beautiful daughters. My brother Brandon passed away just 4 years ago this week from NPC he was 23. We were not aware of his disease until he was 15 yrs old so we didnt know what we were going to be challenged with. Just know that you along with other NPC children and families are in our hearts and prayers everyday that we can find a cure soon as well. Good luck to you and your family.
My daughter was stricken with an unknown neurological illness at 18 months.It’s a long story, here it is shortened.A few months after a flu like illness Laura became ill. with stroke like symptoms first one arm then the leg,then the other arm and then that leg. she was parilized from her neck down.This took about 6 months during which time we had all types of test done. Blood work, Spinaltaps, Catscans,MRI’s, you dame it it was done, one of the blood test was for Limes dezzise. before that test was back we had treatment for Limes dezzise started first series was 20 shots in 10 days, test came back negative so we ended treatment of that. skipping the final sequens of shots which would have been done in six months after the first.Dr’s told us she would never crawl,or walk again and to be thankful she still had her brain. they also said she would not live past 5. Laura is now 22 and has her own son of 18 months. I thank Shriners for all of there help with testing and for the 5 surgeries. witch were needed to help her with walking. she walks with only a slight limp now. Maybe the Limes Dizies treatment could help the Addi and Cassi.
Never lose hope God dose grant mircles. (He will never give you more then you can handle,) My father always says this. Sincerely Ellen Favro
Dear Addi and Cassi, I just saw your story on the show “The Doctors.” You are two beautiful girls, and are so blessed to have such wonderful caring parents.
I’ve seen a lot of love in your video. May the Lord and doctors help find a cure for this dreaded disease soon. Be strong and have lots of courage. May God bless your family.