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The Addi and Cassi Fund - Niemann Pick Type C
Treatments & Cures for Niemann Pick Type C – Childhood Alzheimer's
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I saw Cassi and Addi’s story on ABC news and immediately went to your website. You have 2 beautiful daughters.My thoughts are with you and your family!
For them and all of the children with NPC I will pray for a cure!
I really hope they live. I think that they are very important to the whole world. You can really tell that they have a really, really strong bond together. All of you are in my prayers 🙂 I AM SOOOO SAD FOR YOU!!!!!
such gorgeous girls)))) I pray that the disease slows down)))
What beautiful little girls… My thoughts and prayers are with you and your family during this trying time.. God bless and hopefully they find a cure.
I am truly in awe of the strength and courage you all have in not giving up the most difficult fight in saving these precious and beautiful girls. I am the parent of twin daughters myself and I know what a blessing it is to be the parent of my girls. I try not to take for granted a single day raising them and watching the awesome bond they have together. You can see that beautiful bond in Addi and Cassi in each picture you allowed us to see of them. I am also the neighbor to an amazing family like yourselves. They are fighting the difficult fight too. Their daughter was diagnosed with Juvenile Onset Tay-Sachs Disease. They made difficult decisions with experimental opportunities to save their daughter and have since dedicated their lives to finding a cure for this fatal disease. They have set up a national foundation and took it world wide to not only save their daughter, but to fight for all other children like her. Watching the strenght you all have in finding a cure for your children and not stopping until then is so inspirational and I can only pray that your courage to fight until the end will inspire everyone you touch to help in the fight. We will pray until the day comes for the cure to save your children.