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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; Videos</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>Vote 4 Hope at Pepsi Refresh To Find Cures for Rare Skin Conditions like Epidermolysis Bullosa, Harlequin Ichthyosis, Xeroderma-Pigmentosum</title>
		<link>http://addiandcassi.com/vote-4-hope-pepsi-refresh-find-cures-rare-skin-conditions-epidermolysis-bullosa-harlequin-ichthyosis-xerodermapigmentosum/</link>
		<comments>http://addiandcassi.com/vote-4-hope-pepsi-refresh-find-cures-rare-skin-conditions-epidermolysis-bullosa-harlequin-ichthyosis-xerodermapigmentosum/#comments</comments>
		<pubDate>Thu, 02 Sep 2010 23:37:06 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Videos]]></category>
		<category><![CDATA[Argyria]]></category>
		<category><![CDATA[Boy Beneath the Bandages]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Epidermolysis Bullosa]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[Hallopeau–Siemens disease]]></category>
		<category><![CDATA[Harlequin Ichthyosis]]></category>
		<category><![CDATA[list rare skin conditions]]></category>
		<category><![CDATA[Morgellons Disease]]></category>
		<category><![CDATA[Neutrophilic Dermatosis]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Pepsi Refresh]]></category>
		<category><![CDATA[Rare Disease Day video contest]]></category>
		<category><![CDATA[Recessive dystrophic epidermolysis bullosa]]></category>
		<category><![CDATA[skin]]></category>
		<category><![CDATA[skin disorders and rashes]]></category>
		<category><![CDATA[Sweets Syndrome]]></category>
		<category><![CDATA[Sweets Syndrome or Neutrophilic Dermatosis]]></category>
		<category><![CDATA[Urticaria]]></category>
		<category><![CDATA[Vote 4 Hope]]></category>
		<category><![CDATA[Vote4Hope Pepsi Refresh]]></category>
		<category><![CDATA[Xeroderma-Pigmentosum]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=3088</guid>
		<description><![CDATA[During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings throughout September to raise awareness for all rare diseases, not simply the horrific disease called Niemann Pick Type C that my six year old identical twins suffer from. Today&#8217;s videos are some of the most heartwrenching videos I have ever watched. The [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>Rare Disease Foundations Need To Vote 4 Hope In Pepsi Refresh</title>
		<link>http://addiandcassi.com/rare-disease-foundations-vote-4-hope-pepsi-refresh/</link>
		<comments>http://addiandcassi.com/rare-disease-foundations-vote-4-hope-pepsi-refresh/#comments</comments>
		<pubDate>Thu, 02 Sep 2010 02:53:51 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Videos]]></category>
		<category><![CDATA[Bruguda Syndrome]]></category>
		<category><![CDATA[Chromosome 6 Deficiency]]></category>
		<category><![CDATA[Citrullinemia]]></category>
		<category><![CDATA[Congenital Central Hyperventilation Syndrome]]></category>
		<category><![CDATA[Dandy Walker Syndrome]]></category>
		<category><![CDATA[Erythropoietic protoporphyria]]></category>
		<category><![CDATA[Gaucher Type II]]></category>
		<category><![CDATA[Haemangioma]]></category>
		<category><![CDATA[identical twins]]></category>
		<category><![CDATA[Krabbe disease]]></category>
		<category><![CDATA[Langerhans Cell Histiocytosis]]></category>
		<category><![CDATA[NBIA Disorder]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Pallister Killian Syndrome or PKS]]></category>
		<category><![CDATA[Patau Syndrome Mosaic or Trisomy 13]]></category>
		<category><![CDATA[Primary Immune Deficiency]]></category>
		<category><![CDATA[Recessive dystrophic epidermolysis bullosa]]></category>
		<category><![CDATA[Spinal Muscular Atrophy Type 1]]></category>
		<category><![CDATA[Spinal Muscular Atrophy Type 2]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=3024</guid>
		<description><![CDATA[During the Vote4Hope Pepsi Refresh Rare Disease Campaign, I am making video postings on Addi and Cassi&#8217;s website to raise awareness for all rare diseases, not just the horrific disease called Niemann Pick Type C that I am fighting against on behalf of my six year old identical twins. Please take a minute to watch [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>University of Notre Dame Airs Video During Football Game Highlighting Rare Cholesterol Disease</title>
		<link>http://addiandcassi.com/university-of-notre-dame-airs-video-during-football-game-highlighting-rare-cholesterol-disease/</link>
		<comments>http://addiandcassi.com/university-of-notre-dame-airs-video-during-football-game-highlighting-rare-cholesterol-disease/#comments</comments>
		<pubDate>Tue, 08 Sep 2009 20:43:28 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Videos]]></category>
		<category><![CDATA[Alzheimer's disease]]></category>
		<category><![CDATA[ataxia]]></category>
		<category><![CDATA[Cholesterol]]></category>
		<category><![CDATA[Dementia]]></category>
		<category><![CDATA[dystonia]]></category>
		<category><![CDATA[epilepsy]]></category>
		<category><![CDATA[nervous system]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Parseghian Family]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[Univeristy of Nevada Reno]]></category>
		<category><![CDATA[Univeristy of Notre Dame]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2102</guid>
		<description><![CDATA[Thanks to the University of Notre Dame for highlighting the Parseghian Family&#8217;s fight against Niemann Pick Type C disease during the Notre Dame versus University of Nevada Reno football game.   They have a true commitment to helping fight not only Niemann Pick Type C but rare disease of all types. A number of people [...]]]></description>
		<wfw:commentRss>http://addiandcassi.com/university-of-notre-dame-airs-video-during-football-game-highlighting-rare-cholesterol-disease/feed/</wfw:commentRss>
		<slash:comments>0</slash:comments>
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		<title>CNN Covers How California Health Care Budget Cuts Threaten Life of Little Girl Suffering From Deadly Cholesterol Disease</title>
		<link>http://addiandcassi.com/cnn-covers-how-california-health-care-budget-cuts-threaten-life-of-little-girl-suffering-from-deadly-cholesterol-disease/</link>
		<comments>http://addiandcassi.com/cnn-covers-how-california-health-care-budget-cuts-threaten-life-of-little-girl-suffering-from-deadly-cholesterol-disease/#comments</comments>
		<pubDate>Wed, 05 Aug 2009 19:49:21 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Health Care Policy]]></category>
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		<category><![CDATA[Caring Connection]]></category>
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		<category><![CDATA[Dementia]]></category>
		<category><![CDATA[Governor Arnold Schwarzenegger]]></category>
		<category><![CDATA[Jessica Leoni]]></category>
		<category><![CDATA[Los Angeles]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[seizures]]></category>
		<category><![CDATA[Westside Regional Center]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=1829</guid>
		<description><![CDATA[Embedded video from CNN Video Here is a story on sweet little Jessica Leoni who suffers from the same disease as Addi and Cassi. Her health care is being threatened by California&#8217;s Health Care crisis. Here is the story from CNN. LOS ANGELES, California (CNN) &#8212; Anthony and Lisa Leoni have little time to worry [...]]]></description>
		<wfw:commentRss>http://addiandcassi.com/cnn-covers-how-california-health-care-budget-cuts-threaten-life-of-little-girl-suffering-from-deadly-cholesterol-disease/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
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		<title>What Dying Kids Can Teach Our Government About Health Care Reform</title>
		<link>http://addiandcassi.com/obamacare-will-not-work-what-dying-kids-can-teach-our-government-about-health-care-reform/</link>
		<comments>http://addiandcassi.com/obamacare-will-not-work-what-dying-kids-can-teach-our-government-about-health-care-reform/#comments</comments>
		<pubDate>Wed, 05 Aug 2009 04:47:39 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Videos]]></category>
		<category><![CDATA[Alzheimers]]></category>
		<category><![CDATA[Arlen Specter]]></category>
		<category><![CDATA[Cholesterol Kids]]></category>
		<category><![CDATA[Harry Reid]]></category>
		<category><![CDATA[Kathleen Sebelius]]></category>
		<category><![CDATA[Nancy Pelosi]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[ObamaCare]]></category>
		<category><![CDATA[Oprah]]></category>
		<category><![CDATA[patient-centered health-care reform]]></category>
		<category><![CDATA[personalized medicine]]></category>
		<category><![CDATA[President Barack Obama]]></category>
		<category><![CDATA[rare disease]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=1788</guid>
		<description><![CDATA[Addi &#038; Cassi Story II from Addi &#38; Cassi Hempel on Vimeo. Here is a video we put together for Oprah last year about the issues we are facing with health care and drug development system in the United States and what happens when your children are dying from a rare and fatal cholesterol disease [...]]]></description>
		<wfw:commentRss>http://addiandcassi.com/obamacare-will-not-work-what-dying-kids-can-teach-our-government-about-health-care-reform/feed/</wfw:commentRss>
		<slash:comments>3</slash:comments>
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