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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; Rare Disease</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>Denim Blue Jeans Ribbon To Symbolize Rare Disease Awareness; New Campaign of Jeans and Genes A Perfect Fit!</title>
		<link>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/</link>
		<comments>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/#comments</comments>
		<pubDate>Tue, 02 Feb 2010 03:30:03 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[American Heart Association Red Dress]]></category>
		<category><![CDATA[BioMarin]]></category>
		<category><![CDATA[Blue jeans denim ribbon]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Cystic Fibrosis]]></category>
		<category><![CDATA[DonateGames.org]]></category>
		<category><![CDATA[FasterCures]]></category>
		<category><![CDATA[Fragile X]]></category>
		<category><![CDATA[Genzyme]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
		<category><![CDATA[Life Technologies]]></category>
		<category><![CDATA[Mayo Clinic]]></category>
		<category><![CDATA[National Institues of Health]]></category>
		<category><![CDATA[Orphan Drug Act 1983]]></category>
		<category><![CDATA[Pompe]]></category>
		<category><![CDATA[Prader Willi Syndrome]]></category>
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		<category><![CDATA[Susan G. Komen Pink Ribbon]]></category>
		<category><![CDATA[World Rare Disease Day 2010]]></category>

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		<description><![CDATA[The Rare Disease community now has a powerful and universal new symbol to rally around &#8212; a blue jeans denim ribbon created by the Global Genes Project and the Children&#8217;s Rare Disease Network.  The worldwide initiative lauched today and is focused on raising awareness for millions of children living with rare and debilitating diseases like Addi and [...]]]></description>
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		<title>Special Olympics and Disability Advocate Eunice Kennedy Shriver dies</title>
		<link>http://addiandcassi.com/special-olympics-and-disability-advocate-eunice-kennedy-shriver-dies/</link>
		<comments>http://addiandcassi.com/special-olympics-and-disability-advocate-eunice-kennedy-shriver-dies/#comments</comments>
		<pubDate>Tue, 11 Aug 2009 16:56:57 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Disability Advocate]]></category>
		<category><![CDATA[Eunice Kennedy Shriver]]></category>
		<category><![CDATA[Jay Leno joke]]></category>
		<category><![CDATA[President Obama]]></category>
		<category><![CDATA[Special Olympics]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=1873</guid>
		<description><![CDATA[A big thank you to Eunice Kennedy Shriver for leaving millions of people and families dealing with disabilities of all types a lasting legacy. Maybe President Obama will make a nice comment about Mrs. Shriver today and all she did for the Special Olympics considering his horrible Jay Leno joke a few months back.
Washington Post [...]]]></description>
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		<title>President Obama, Please Meet Addi and Cassi To Understand Why Your Jay Leno Joke Is No Laughing Matter</title>
		<link>http://addiandcassi.com/president-obama-please-meet-addi-and-cassi-to-understand-why-your-leno-joke-is-no-laughing-matter/</link>
		<comments>http://addiandcassi.com/president-obama-please-meet-addi-and-cassi-to-understand-why-your-leno-joke-is-no-laughing-matter/#comments</comments>
		<pubDate>Sat, 21 Mar 2009 16:54:32 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Opinion]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[At Children's Project]]></category>
		<category><![CDATA[Ataxia Telangiectasia]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Jay Leno]]></category>
		<category><![CDATA[President Obama joke]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[Special Olympics]]></category>

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		<description><![CDATA[ 
President Obama&#8217;s Special Olympics joke on Jay Leno may not seem like a big deal to some Americans but for others the gaffe is disappointing. Our twins, Addi&#160;and Cassi,&#160;are afflicted with a rare and fatal cholesterol disease called Niemann Pick Type C and they are considered &#8220;special needs.&#34;  We have all made mistakes [...]]]></description>
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		<slash:comments>2</slash:comments>
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		<title>World Rare Disease Day 2009 Genes Video</title>
		<link>http://addiandcassi.com/world-rare-disease-day-2008-genes-video/</link>
		<comments>http://addiandcassi.com/world-rare-disease-day-2008-genes-video/#comments</comments>
		<pubDate>Tue, 03 Feb 2009 03:13:19 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Videos]]></category>
		<category><![CDATA[Batten disease]]></category>
		<category><![CDATA[Children Rare Disease Network]]></category>
		<category><![CDATA[Gaucher Disease]]></category>
		<category><![CDATA[Hide and Seek Foundation]]></category>
		<category><![CDATA[MPS]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[NORD]]></category>
		<category><![CDATA[Progeria]]></category>
		<category><![CDATA[Rare Disease Video]]></category>
		<category><![CDATA[Williams Syndrome]]></category>
		<category><![CDATA[World Rare Disease Day]]></category>

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		<description><![CDATA[
I made this video for World Rare Disease Day 2008 to bring global attention to the fact that Rare Disease is not so rare &#8212; it can happen to anyone or any family. Although each Rare Disease affects a small number of people, taken all together rare diseases affect millions of people in the world. [...]]]></description>
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