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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; Rare Disease</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>Rare Disease Day Logo and Ribbons &#8211; Patient Advocates Join The RARE Team!</title>
		<link>http://addiandcassi.com/rare-disease-day-logos/</link>
		<comments>http://addiandcassi.com/rare-disease-day-logos/#comments</comments>
		<pubDate>Sat, 18 Feb 2012 03:00:17 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Featured Stories]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[rare disease advocacy organization]]></category>
		<category><![CDATA[rare disease community]]></category>
		<category><![CDATA[Rare Disease Day]]></category>
		<category><![CDATA[Rare Disease Day 2012]]></category>
		<category><![CDATA[Rare disease day events]]></category>
		<category><![CDATA[Rare Disease Day logos]]></category>
		<category><![CDATA[rare disease ribbon]]></category>

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		<description><![CDATA[Here are the Rare Disease Day logos for 2012 from the Global Genes Project, the leading rare disease advocacy organization for the rare disease community. Since Rare Disease Day 2012 falls at the end of February each year, the date for 2012 is Feb. 29 (leap year). Wear jeans or demin on Rare Disease Day [...]]]></description>
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		<title>RareArtist.org &#8211; Rare Art Created by Rare People to Support Rare Disease Awareness</title>
		<link>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/</link>
		<comments>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/#comments</comments>
		<pubDate>Fri, 20 Aug 2010 21:49:26 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Art Competition]]></category>
		<category><![CDATA[Dementia]]></category>
		<category><![CDATA[fatal childhood disease]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
		<category><![CDATA[Niemann Pick Type C disease]]></category>
		<category><![CDATA[Rare Art]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[RareArtist]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2936</guid>
		<description><![CDATA[What a great idea &#8212; a new website to showcase Rare Art created by Rare People to support Rare Disease awareness.  The Kakkis Everylife Foundation has launched RareArtist.org for artists of all ages affected by a rare disease. There are almost 7,000 rare diseases that affect more than 25 million Americans &#8212; many of them [...]]]></description>
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		<title>Denim Blue Jeans Ribbon To Symbolize Rare Disease Awareness; New Campaign of Jeans and Genes A Perfect Fit!</title>
		<link>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/</link>
		<comments>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/#comments</comments>
		<pubDate>Tue, 02 Feb 2010 03:30:03 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[American Heart Association Red Dress]]></category>
		<category><![CDATA[BioMarin]]></category>
		<category><![CDATA[Blue jeans denim ribbon]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Cystic Fibrosis]]></category>
		<category><![CDATA[DonateGames.org]]></category>
		<category><![CDATA[FasterCures]]></category>
		<category><![CDATA[Fragile X]]></category>
		<category><![CDATA[Genzyme]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
		<category><![CDATA[Life Technologies]]></category>
		<category><![CDATA[Mayo Clinic]]></category>
		<category><![CDATA[National Institues of Health]]></category>
		<category><![CDATA[Orphan Drug Act 1983]]></category>
		<category><![CDATA[Pompe]]></category>
		<category><![CDATA[Prader Willi Syndrome]]></category>
		<category><![CDATA[Shire]]></category>
		<category><![CDATA[Susan G. Komen Pink Ribbon]]></category>
		<category><![CDATA[World Rare Disease Day 2010]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/wordpress/?p=2485</guid>
		<description><![CDATA[The Rare Disease community now has a powerful and universal new symbol to rally around &#8212; a blue jeans denim ribbon created by the Global Genes Project and the Children&#8217;s Rare Disease Network.  The worldwide initiative lauched today and is focused on raising awareness for millions of children living with rare and debilitating diseases like Addi and [...]]]></description>
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		<title>Special Olympics and Disability Advocate Eunice Kennedy Shriver dies</title>
		<link>http://addiandcassi.com/special-olympics-and-disability-advocate-eunice-kennedy-shriver-dies/</link>
		<comments>http://addiandcassi.com/special-olympics-and-disability-advocate-eunice-kennedy-shriver-dies/#comments</comments>
		<pubDate>Tue, 11 Aug 2009 16:56:57 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Disability Advocate]]></category>
		<category><![CDATA[Eunice Kennedy Shriver]]></category>
		<category><![CDATA[Jay Leno joke]]></category>
		<category><![CDATA[President Obama]]></category>
		<category><![CDATA[Special Olympics]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=1873</guid>
		<description><![CDATA[A big thank you to Eunice Kennedy Shriver for leaving millions of people and families dealing with disabilities of all types a lasting legacy. Maybe President Obama will make a nice comment about Mrs. Shriver today and all she did for the Special Olympics considering his horrible Jay Leno joke a few months back. Washington [...]]]></description>
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		<title>President Obama, Please Meet Addi and Cassi To Understand Why Your Jay Leno Joke Is No Laughing Matter</title>
		<link>http://addiandcassi.com/president-obama-please-meet-addi-and-cassi-to-understand-why-your-leno-joke-is-no-laughing-matter/</link>
		<comments>http://addiandcassi.com/president-obama-please-meet-addi-and-cassi-to-understand-why-your-leno-joke-is-no-laughing-matter/#comments</comments>
		<pubDate>Sat, 21 Mar 2009 16:54:32 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Opinion]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[At Children's Project]]></category>
		<category><![CDATA[Ataxia Telangiectasia]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Jay Leno]]></category>
		<category><![CDATA[President Obama joke]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[Special Olympics]]></category>

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		<description><![CDATA[President Obama’s Special Olympics joke on Jay Leno may not seem like a big deal to some Americans but for others the gaffe is disappointing. Our twins, Addi and Cassi, are afflicted with a rare and fatal cholesterol disease called Niemann Pick Type C and they are considered “special needs.&#8221; We have all made mistakes with words [...]]]></description>
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