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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; News</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>RareArtist.org &#8211; Rare Art Created by Rare People to Support Rare Disease Awareness</title>
		<link>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/</link>
		<comments>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/#comments</comments>
		<pubDate>Fri, 20 Aug 2010 21:49:26 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Art Competition]]></category>
		<category><![CDATA[Dementia]]></category>
		<category><![CDATA[fatal childhood disease]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
		<category><![CDATA[Niemann Pick Type C disease]]></category>
		<category><![CDATA[Rare Art]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[RareArtist]]></category>

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		<description><![CDATA[What a great idea &#8212; a new website to showcase Rare Art created by Rare People to support Rare Disease awareness.  The Kakkis Everylife Foundation has launched RareArtist.org for artists of all ages affected by a rare disease. There are almost 7,000 rare diseases that affect more than 25 million Americans &#8212; many of them [...]]]></description>
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		<title>Social Security Disability &#8216;Compassionate Allowance&#8217; &#8211; Only For Those Who are Impoverished?</title>
		<link>http://addiandcassi.com/social-security-disability-compassionate-allowance-requirements/</link>
		<comments>http://addiandcassi.com/social-security-disability-compassionate-allowance-requirements/#comments</comments>
		<pubDate>Sat, 06 Mar 2010 02:13:14 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Compassionate Allowance Program]]></category>
		<category><![CDATA[National Organization for Rare Disorders]]></category>
		<category><![CDATA[Nevada]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Social Security]]></category>
		<category><![CDATA[Social Security Disability]]></category>
		<category><![CDATA[Social Security State Listings]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2635</guid>
		<description><![CDATA[Today I called the Social Security Office in Nevada to find out about the compassionate allowance program for our twins. Last month, the Social Security Administration added 38 more conditions to the already 50 rare diseases and cancers designated for compassionate allowance, which provides expedited review of disability applications from people with severely disabling conditions. [...]]]></description>
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		<title>Rare Disease Idea Leads &#8216;Ideas For Change In America&#8217; Competition by Change.org</title>
		<link>http://addiandcassi.com/rare-disease-idea-leads-ideas-for-change-in-america-competition-by-change-org/</link>
		<comments>http://addiandcassi.com/rare-disease-idea-leads-ideas-for-change-in-america-competition-by-change-org/#comments</comments>
		<pubDate>Thu, 04 Mar 2010 04:42:35 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Change.org]]></category>
		<category><![CDATA[Ideas For Change In America Winner]]></category>
		<category><![CDATA[Obama Administration]]></category>
		<category><![CDATA[rare disease]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2623</guid>
		<description><![CDATA[Ideas for Change in America is a competition that empowers citizens to identify and build momentum around a diverse range of ideas for addressing the challenges our country faces. From January &#8211; February 2010, more than 2,500 ideas were submitted and voted on by 100,000 people across the country. The top three rated ideas from [...]]]></description>
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		<title>FDA and EMA Forge Rare Disease Collaboration; Announcement Coincides with World Rare Disease Day 2010</title>
		<link>http://addiandcassi.com/fda-and-ema-forge-rare-disease-collaboration-announcement-coincides-with-world-rare-disease-day-2010/</link>
		<comments>http://addiandcassi.com/fda-and-ema-forge-rare-disease-collaboration-announcement-coincides-with-world-rare-disease-day-2010/#comments</comments>
		<pubDate>Mon, 01 Mar 2010 02:11:37 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Featured Stories]]></category>
		<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Dr. Jordi Llinares]]></category>
		<category><![CDATA[Dr. Timothy Cote]]></category>
		<category><![CDATA[EMA]]></category>
		<category><![CDATA[European Medicines Agency]]></category>
		<category><![CDATA[FDA]]></category>
		<category><![CDATA[Office of Orphan Products Development]]></category>
		<category><![CDATA[U.S. Food and Drug Administration]]></category>
		<category><![CDATA[World Rare Disease Day]]></category>

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		<description><![CDATA[In recognition of World Rare Disease Day 2010, the U.S. Food and Drug Administration (FDA) and the European Medicines Agency (EMA) announced that they will collaborate together and now accept a single annual report from sponsors with an orphan drug designation for rare medical conditions. The joint announcement was made by Dr. Timothy Cote, director [...]]]></description>
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		<title>Denim Blue Jeans Ribbon To Symbolize Rare Disease Awareness; New Campaign of Jeans and Genes A Perfect Fit!</title>
		<link>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/</link>
		<comments>http://addiandcassi.com/denim-blue-jeans-ribbon-to-symbolize-rare-disease-awareness-new-campaign-of-jeans-and-genes-a-perfect-fit/#comments</comments>
		<pubDate>Tue, 02 Feb 2010 03:30:03 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[American Heart Association Red Dress]]></category>
		<category><![CDATA[BioMarin]]></category>
		<category><![CDATA[Blue jeans denim ribbon]]></category>
		<category><![CDATA[Children's Rare Disease Network]]></category>
		<category><![CDATA[Cystic Fibrosis]]></category>
		<category><![CDATA[DonateGames.org]]></category>
		<category><![CDATA[FasterCures]]></category>
		<category><![CDATA[Fragile X]]></category>
		<category><![CDATA[Genzyme]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
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		<category><![CDATA[National Institues of Health]]></category>
		<category><![CDATA[Orphan Drug Act 1983]]></category>
		<category><![CDATA[Pompe]]></category>
		<category><![CDATA[Prader Willi Syndrome]]></category>
		<category><![CDATA[Shire]]></category>
		<category><![CDATA[Susan G. Komen Pink Ribbon]]></category>
		<category><![CDATA[World Rare Disease Day 2010]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/wordpress/?p=2485</guid>
		<description><![CDATA[The Rare Disease community now has a powerful and universal new symbol to rally around &#8212; a blue jeans denim ribbon created by the Global Genes Project and the Children&#8217;s Rare Disease Network.  The worldwide initiative lauched today and is focused on raising awareness for millions of children living with rare and debilitating diseases like Addi and [...]]]></description>
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