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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; News</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>Rare Disease Day Logo and Ribbons &#8211; Patient Advocates Join The RARE Team!</title>
		<link>http://addiandcassi.com/rare-disease-day-logos/</link>
		<comments>http://addiandcassi.com/rare-disease-day-logos/#comments</comments>
		<pubDate>Sat, 18 Feb 2012 03:00:17 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Featured Stories]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Global Genes Project]]></category>
		<category><![CDATA[rare disease advocacy organization]]></category>
		<category><![CDATA[rare disease community]]></category>
		<category><![CDATA[Rare Disease Day]]></category>
		<category><![CDATA[Rare Disease Day 2012]]></category>
		<category><![CDATA[Rare disease day events]]></category>
		<category><![CDATA[Rare Disease Day logos]]></category>
		<category><![CDATA[rare disease ribbon]]></category>

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		<description><![CDATA[Here are the Rare Disease Day logos for 2012 from the Global Genes Project, the leading rare disease advocacy organization for the rare disease community. Since Rare Disease Day 2012 falls at the end of February each year, the date for 2012 is Feb. 29 (leap year). Wear jeans or demin on Rare Disease Day [...]]]></description>
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		<title>RareArtist.org &#8211; Rare Art Created by Rare People to Support Rare Disease Awareness</title>
		<link>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/</link>
		<comments>http://addiandcassi.com/rareartistorg-rare-art-created-rare-people-support-rare-disease-awareness/#comments</comments>
		<pubDate>Fri, 20 Aug 2010 21:49:26 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Art Competition]]></category>
		<category><![CDATA[Dementia]]></category>
		<category><![CDATA[fatal childhood disease]]></category>
		<category><![CDATA[Kakkis EveryLife Foundation]]></category>
		<category><![CDATA[Niemann Pick Type C disease]]></category>
		<category><![CDATA[Rare Art]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[RareArtist]]></category>

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		<description><![CDATA[What a great idea &#8212; a new website to showcase Rare Art created by Rare People to support Rare Disease awareness.  The Kakkis Everylife Foundation has launched RareArtist.org for artists of all ages affected by a rare disease. There are almost 7,000 rare diseases that affect more than 25 million Americans &#8212; many of them [...]]]></description>
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		<title>Social Security Disability &#8216;Compassionate Allowance&#8217; &#8211; Only For Those Who are Impoverished?</title>
		<link>http://addiandcassi.com/social-security-disability-compassionate-allowance-requirements/</link>
		<comments>http://addiandcassi.com/social-security-disability-compassionate-allowance-requirements/#comments</comments>
		<pubDate>Sat, 06 Mar 2010 02:13:14 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Compassionate Allowance Program]]></category>
		<category><![CDATA[National Organization for Rare Disorders]]></category>
		<category><![CDATA[Nevada]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Social Security]]></category>
		<category><![CDATA[Social Security Disability]]></category>
		<category><![CDATA[Social Security State Listings]]></category>

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		<description><![CDATA[Today I called the Social Security Office in Nevada to find out about the compassionate allowance program for our twins. Last month, the Social Security Administration added 38 more conditions to the already 50 rare diseases and cancers designated for compassionate allowance, which provides expedited review of disability applications from people with severely disabling conditions. [...]]]></description>
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		<title>Rare Disease Idea Leads &#8216;Ideas For Change In America&#8217; Competition by Change.org</title>
		<link>http://addiandcassi.com/rare-disease-idea-leads-ideas-for-change-in-america-competition-by-change-org/</link>
		<comments>http://addiandcassi.com/rare-disease-idea-leads-ideas-for-change-in-america-competition-by-change-org/#comments</comments>
		<pubDate>Thu, 04 Mar 2010 04:42:35 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Change.org]]></category>
		<category><![CDATA[Ideas For Change In America Winner]]></category>
		<category><![CDATA[Obama Administration]]></category>
		<category><![CDATA[rare disease]]></category>

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		<description><![CDATA[Ideas for Change in America is a competition that empowers citizens to identify and build momentum around a diverse range of ideas for addressing the challenges our country faces. From January &#8211; February 2010, more than 2,500 ideas were submitted and voted on by 100,000 people across the country. The top three rated ideas from [...]]]></description>
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		<title>FDA and EMA Forge Rare Disease Collaboration; Announcement Coincides with World Rare Disease Day 2010</title>
		<link>http://addiandcassi.com/fda-and-ema-forge-rare-disease-collaboration-announcement-coincides-with-world-rare-disease-day-2010/</link>
		<comments>http://addiandcassi.com/fda-and-ema-forge-rare-disease-collaboration-announcement-coincides-with-world-rare-disease-day-2010/#comments</comments>
		<pubDate>Mon, 01 Mar 2010 02:11:37 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Featured Stories]]></category>
		<category><![CDATA[Health Care Policy]]></category>
		<category><![CDATA[Dr. Jordi Llinares]]></category>
		<category><![CDATA[Dr. Timothy Cote]]></category>
		<category><![CDATA[EMA]]></category>
		<category><![CDATA[European Medicines Agency]]></category>
		<category><![CDATA[FDA]]></category>
		<category><![CDATA[Office of Orphan Products Development]]></category>
		<category><![CDATA[U.S. Food and Drug Administration]]></category>
		<category><![CDATA[World Rare Disease Day]]></category>

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		<description><![CDATA[In recognition of World Rare Disease Day 2010, the U.S. Food and Drug Administration (FDA) and the European Medicines Agency (EMA) announced that they will collaborate together and now accept a single annual report from sponsors with an orphan drug designation for rare medical conditions. The joint announcement was made by Dr. Timothy Cote, director [...]]]></description>
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