Tuesday, August 22, 2017

2008 Sponsorship Registration

April 3, 2008 by  
Filed under 2008 Fundraisers

Please sign-up as a Corporate Sponsor using the form below:

If you prefer, you can download the following form and send it to the Addi and Cassi fund:

To download a PDF version of the sponsorship information page:

To purchase individual or group table tickets please click on the following:

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2008 Boston Road Rally & Party

April 3, 2008 by  
Filed under Boston Road Rally

Some very dear friends of Addi and Cassi’s in the Boston area have volunteered to host a fun Road Rally and Party to benefit The Addi and Cassi Fund.
WHEN: May 18, 2008 @ 2:30pm
WHERE:  Starting in Lynnfield MA (suburb north of Boston)
TICKETS: Purchase your tickets online Here

About the Road Rally We’ve designed a fun and challenging road rally that starts in Lynnfield and ends in Andover. We will give you clues to help you navigate through beautiful New England roads and answer questions along the way—kind of like a scavenger hunt. There will be a party at the end of the route where you can share your experiences with your fellow rallyers. If you choose not to enter the rally, you can still join us for the awards party at the end.
Charitable Contribution We are suggesting a minimum charitable contribution of $100 per car, or $50 per person for the awards party, with all proceeds going directly to the APMRF – Addi and Cassi Fund. This fund is 100% directed by the Hempel Family with input from the Scientific Advisory Board at the Parseghian Foundation.  The focus is to provide incremental funding to existing research efforts and to fund accelerated research in NPC and test emerging and experimental therapies that can have very near term impact to saving Addi and Cassi and other NP-C children. Map of Start and End Locations: View Larger Map Please plan to arrive at the starting location (3 Glen Dr Lynnfield, MA) by 2:30pm. We’ll have a short drivers meeting, and the first car will leave at 3pm. Cars will leave at 1-minute intervals thereafter.
Rain Date:
Since we moved the date to Sunday so that The Hempel’s can join us we are going to have this event rain or shine!
Your Hosts:
Stephen and Andrea Gondert Joe and Susyn Lichtenberg Bob McGill

 

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Rooms/Lodging For May 10th Gala

April 2, 2008 by  
Filed under Lodging/Rooms


circuslogo

A block of rooms is reserved at a discounted rate at Circus Circus Hotel for our event.  Circus Circus is attached to The Eldorado and The Silver Legacy via indoor bridges.  These three hotels form a “complex” that is directly next door to the event site (new downtown Reno Ballroom) .  Circus Circus is currently offering rooms for Saturday Night ONLY (many hotels are require a 2 night minimum).

The discounted rates are:

North Tower Standards

$95.00

Sky Tower Standards

$85.00

NOTE: You can upgrade your room to a mini-suite for an additional $30/night on a first come first serve basis.

Please tell reservations that you are calling about group code: “IADDI”.  If they can not find the group code please let them know that you are part of the “Addi and Cassi Hempel Fund” Gala on May 10th.

Reservations
1-800-648-5010
Circus Circus Website


We recommend the following excellent alternative hotels in Reno:

Silver Legacy
Reservations
1-800-687-8733

Eldorado Hotel

Reservations
1-800-879-8879

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A Boy With A Very Big Heart

March 18, 2008 by  
Filed under Get Involved

I was laying in bed the other afternoon after staying up all night emailing scientists the results of Addi and Cassi’s brain scans when the doorbell rang.  It was Christopher Serio with an envelope in hand.  Chris is 11 years old and is the son of our friend and former neighbor, Bob.   “Here, this is for Addi and Cassi,” he says and proceeds to hand me an envelope decorated with a red heart, a sunshine and pine trees.   “I just counted up all my savings from when I was little.  I have $653 dollars and I want to give Cassi and Addi $150 dollars of my savings for research into Niemann Pick Type C.” I open the envelope and it’s full of cash.  I almost burst into tears but I somehow hold it together and give him a great big hug.   I think about how generous this young man is.  It turns out that this is an entire year of his allowance.   Would anyone else we know give us an entire year of their savings to help with research?  I am so inspired by Chris and his generosity.   As I watch him walk down the driveway and get into his Dad’s truck, I hold out hope that Addi and Cassi will someday be competing for his attention.  A lovely young man with a very big heart.  That’s Christopher Serio.

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Zero Mac and Cheese

January 28, 2008 by  
Filed under Recipe Submissions

VEGAN MACARONI AND CHEESE Sauce: 2 cups water ¼ cup raw cashews 1 (4oz) jar pimentos, drained 1 cup nutritional yeast flakes 2 tablespoons cornstarch 1 tablespoon fresh lemon juice 1 ½ teaspoons salt, or to taste ½ teaspoon garlic powder ½ teaspoon white pepper Combine all ingredients and blend until completely smooth. Transfer mixture to a medium saucepan and whisk constantly over medium heat until thickened, about 5 to 6 minutes. Cook 1 lb. of macaroni according to package directions. Combine with sauce and put in a 9” x 13” glass pan. Top with bread crumbs. Bake at 375 degrees for 20 minutes.

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