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	<title>The Addi and Cassi Fund - Niemann Pick Type C &#187; Cyclodextrin News</title>
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	<description>Treatments &#38; Cures for Niemann Pick Type C - Childhood Alzheimer&#039;s</description>
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		<title>Family of Twins with Rare and Fatal Cholesterol Disease To Seek FDA Approval To Deliver Cyclodextrin Into the Brain</title>
		<link>http://addiandcassi.com/family-of-twins-with-rare-and-fatal-cholesterol-disease-to-seek-fda-approval-to-deliver-cyclodextrin-into-the-brain/</link>
		<comments>http://addiandcassi.com/family-of-twins-with-rare-and-fatal-cholesterol-disease-to-seek-fda-approval-to-deliver-cyclodextrin-into-the-brain/#comments</comments>
		<pubDate>Fri, 15 Jan 2010 21:11:37 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Cyclodextrin]]></category>
		<category><![CDATA[Cyclodextrin News]]></category>
		<category><![CDATA[Begley Kings College London]]></category>
		<category><![CDATA[Children's Hospital Oakland]]></category>
		<category><![CDATA[Cholesterol]]></category>
		<category><![CDATA[Compassionate Use IND Cyclodextrin]]></category>
		<category><![CDATA[Extraordinary Measures]]></category>
		<category><![CDATA[FDA]]></category>
		<category><![CDATA[identical twins]]></category>
		<category><![CDATA[intrathecal cyclodextrin]]></category>
		<category><![CDATA[intraventricular drug delivery]]></category>
		<category><![CDATA[John Crowley]]></category>
		<category><![CDATA[Lysosomal Disease Network World Conference 2010]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[pharmacokinetics  cyclodextrin]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[xanthomas]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2422</guid>
		<description><![CDATA[The tagline of the new movie, Extraordinary Measures, about John Crowley’s fight to save his children from the rare and fatal Pompe disease is&#8230;.Don’t Hope For a Miracle – Make One! We are now working on making our own miracle  &#8211; a new compassionate use investigational new drug (IND) protocol and application that we plan [...]]]></description>
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		<slash:comments>1</slash:comments>
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		<title>Parents To Seek FDA Orphan Drug Designation For Cyclodextrin To Treat Rare and Fatal Cholesterol Disease</title>
		<link>http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/</link>
		<comments>http://addiandcassi.com/parents-to-seek-fda-orphan-drug-designation-for-cyclodextrin-to-treat-rare-and-fatal-cholesterol-disease/#comments</comments>
		<pubDate>Sun, 11 Oct 2009 05:07:28 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Cyclodextrin]]></category>
		<category><![CDATA[Cyclodextrin News]]></category>
		<category><![CDATA[Alzheimers]]></category>
		<category><![CDATA[Cholesterol]]></category>
		<category><![CDATA[enlarged spleen]]></category>
		<category><![CDATA[FDA]]></category>
		<category><![CDATA[Febreze]]></category>
		<category><![CDATA[Genzyme]]></category>
		<category><![CDATA[New Drug Application]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Orphan Drug Act]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[UT Southwestern]]></category>

		<guid isPermaLink="false">http://addiandcassi.com/?p=2216</guid>
		<description><![CDATA[On Tuesday morning at 11am, Addi and Cassi are going to undergo volumetric CT scans of their livers and spleens.  The tests are being conducted by doctors to determine if the cyclodextrin IV infusion treatment the twins are receiving under compassionate use INDs approved by the FDA are reducing the size of their enlarged cholesterol [...]]]></description>
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		<slash:comments>13</slash:comments>
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		<title>New non-drug fix for HIV?</title>
		<link>http://addiandcassi.com/new-non-drug-fix-for-hiv/</link>
		<comments>http://addiandcassi.com/new-non-drug-fix-for-hiv/#comments</comments>
		<pubDate>Wed, 01 Jul 2009 06:49:59 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Cyclodextrin News]]></category>
		<category><![CDATA[HIV-Aids]]></category>
		<category><![CDATA[Anthony Fauci]]></category>
		<category><![CDATA[Centers For Disease Control and Prevention]]></category>
		<category><![CDATA[Elton John AIDS Foundation]]></category>
		<category><![CDATA[FDA]]></category>
		<category><![CDATA[Food and Drug Administration]]></category>
		<category><![CDATA[Gag Protein]]></category>
		<category><![CDATA[HIV AIDS Breakthrough]]></category>
		<category><![CDATA[Investigational New Drug]]></category>
		<category><![CDATA[New HIV AIDS Drug; HIV AIDS Research; Cyclodextrin]]></category>
		<category><![CDATA[NIAID]]></category>
		<category><![CDATA[NIH Office of AIDS Research]]></category>
		<category><![CDATA[One.org]]></category>
		<category><![CDATA[Ryan White; Jack Whitescarver]]></category>
		<category><![CDATA[The Gates Foundation]]></category>

		<guid isPermaLink="false">http://webofhope.com/?p=525</guid>
		<description><![CDATA[The Scientist Magazine By Alison McCook June 2009 Researchers are slowly establishing a connection between an extremely rare genetic disease and HIV &#8212; and homing in on a safe, non-prescription compound that could treat both. Recently, James Hildreth at the Meharry Medical College School of Medicine in Nashville, Tenn., and his colleagues found that cells [...]]]></description>
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		<slash:comments>0</slash:comments>
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		<title>Wacker Chemie Expands US Based Cyclodextrin Facility &#8211; Sugar Compound Poses No Known Health Risks</title>
		<link>http://addiandcassi.com/wacker-chemie-expands-us-based-cyclodextrin-facility-to-meet-increase-in-worldwide-demand-for-sugar-molecule/</link>
		<comments>http://addiandcassi.com/wacker-chemie-expands-us-based-cyclodextrin-facility-to-meet-increase-in-worldwide-demand-for-sugar-molecule/#comments</comments>
		<pubDate>Fri, 12 Jun 2009 21:41:09 +0000</pubDate>
		<dc:creator>Chris Hempel</dc:creator>
				<category><![CDATA[Cyclodextrin News]]></category>
		<category><![CDATA[AIDS Africa]]></category>
		<category><![CDATA[AIDS Drug]]></category>
		<category><![CDATA[alpha cyclodextrin]]></category>
		<category><![CDATA[Alzheimers]]></category>
		<category><![CDATA[beta-cyclodextrin]]></category>
		<category><![CDATA[Cholesterol lowering drug]]></category>
		<category><![CDATA[coenzyme]]></category>
		<category><![CDATA[Eddyville Iowa]]></category>
		<category><![CDATA[gamma cycloextrin]]></category>
		<category><![CDATA[HIV-Aids]]></category>
		<category><![CDATA[Hydroxy Propel Beta Cyclodextrin]]></category>
		<category><![CDATA[New Cholesterol Drug]]></category>
		<category><![CDATA[Niemann Pick Type C]]></category>
		<category><![CDATA[Wacker Chemie]]></category>

		<guid isPermaLink="false">http://webofhope.com/?p=510</guid>
		<description><![CDATA[Wacker Chemie, the Munich-based chemical company, announced that is has expanded its US based cyclodextrin facility in Eddyville, Iowa.  According the the press release issued by Wacker, the new cyclodextrin facility increases the company&#8217;s capacity for alpha (α) and beta (β) cyclodextrins by 50 percent and doubles its capacity for gamma (γ) cyclodextrins. Investment in [...]]]></description>
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