Saving Our Brains

We’re 4 year old identical twins, Addi and Cassi Hempel.  We recently went on a trip to Detroit, Michigan, with our Mom, Aunt and Grandma to have PET scans done on our brains.  We are suffering from a rare and progressive neurological disease called Niemann Pick Type C.   If we don’t do something about it, we’re going to lose our minds.

Our PET scans revealed that just like some Alzheimer’s patients, we have a glucose metabolism problem in the frontal lobes of our brains.  This causes dementia.  One of us (Cassi) has an inflammation spot in the middle of our brain, in the parietal lobe and basal ganglia area.  This is an area of the brain where Parkinson’s patients are often impacted. 

We ask that you take a moment to learn more about us and our fight against NPC.  We have posted our brain videos, report and scans for the world to see.   We hope that through a view into our brains, we can bring answers and treatments not only for ourselves but for others who suffer from neurological conditions of all types.

Watch our Brain Video 
Read our Brain Report

Look At Our PET Scans
Glucose FDG Addi
Glucose FDG Cassi
PK Addi
PK Cassi

This entry was posted on Wednesday, April 2nd, 2008 at 10:59 pm and is filed under About NP-C. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.