Sunday, November 19, 2017

Sierra Strength & Speed Fundraiser

April 18, 2008 by  
Filed under Group Exercise Fundraiser

Please bring yourself, a friend, and/or a family member and join the staff of Sierra Strength and Speed for an "every-fitness-level" fund raiser to benefit the Addi and Cassi Fund. Participants will have fun moving and learning new ways to exercise, avoid injury, and stay fit.

Who: For All Healthy Adults and Teens
When
: Wednesday, April 30th, 2008, 5:30 – 6:30 p.m.

Where: Sierra Strength & Speed Fitness Studio and the WB Baseball Softball Center 3865 Mira Loma, Suite 104 Reno, NV 89502

Suggested Donation: $15 per person (Payable to: APMRF-The Addi and Cassi Fund)

For more Information and to RSVP, contact Joe Dibble:

Map
 

Editor’s Note: Since 2004, Sierra Strength & Speed fitness studio offers Northern Nevada’s best in personal training and nutrition. Their staff includes a Licensed Athletic Trainer and Registered Dietitian with experience working with children, teenagers, adult, and seniors of all abilities. Visit www.sierrastrength.com for more information.

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2008 Gala Sponsors

April 17, 2008 by  
Filed under Gala Sponsors

Title Sponsor:Renown Health

Platinum Sponsors:

Charter
Creative Coverings Charter
Charter Charter
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2008 Sponsorship Registration

April 3, 2008 by  
Filed under 2008 Fundraisers

Please sign-up as a Corporate Sponsor using the form below:

If you prefer, you can download the following form and send it to the Addi and Cassi fund:

To download a PDF version of the sponsorship information page:

To purchase individual or group table tickets please click on the following:

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2008 Boston Road Rally & Party

April 3, 2008 by  
Filed under Boston Road Rally

Some very dear friends of Addi and Cassi’s in the Boston area have volunteered to host a fun Road Rally and Party to benefit The Addi and Cassi Fund.
WHEN: May 18, 2008 @ 2:30pm
WHERE:  Starting in Lynnfield MA (suburb north of Boston)
TICKETS: Purchase your tickets online Here

About the Road Rally We’ve designed a fun and challenging road rally that starts in Lynnfield and ends in Andover. We will give you clues to help you navigate through beautiful New England roads and answer questions along the way—kind of like a scavenger hunt. There will be a party at the end of the route where you can share your experiences with your fellow rallyers. If you choose not to enter the rally, you can still join us for the awards party at the end.
Charitable Contribution We are suggesting a minimum charitable contribution of $100 per car, or $50 per person for the awards party, with all proceeds going directly to the APMRF – Addi and Cassi Fund. This fund is 100% directed by the Hempel Family with input from the Scientific Advisory Board at the Parseghian Foundation.  The focus is to provide incremental funding to existing research efforts and to fund accelerated research in NPC and test emerging and experimental therapies that can have very near term impact to saving Addi and Cassi and other NP-C children. Map of Start and End Locations: View Larger Map Please plan to arrive at the starting location (3 Glen Dr Lynnfield, MA) by 2:30pm. We’ll have a short drivers meeting, and the first car will leave at 3pm. Cars will leave at 1-minute intervals thereafter.
Rain Date:
Since we moved the date to Sunday so that The Hempel’s can join us we are going to have this event rain or shine!
Your Hosts:
Stephen and Andrea Gondert Joe and Susyn Lichtenberg Bob McGill

 

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Dementia In 4 Year Olds. Think about it.

April 2, 2008 by  
Filed under Alzheimers

Human-Brain-Color

Saving Our Brains

We’re 4 year old identical twins, Addi and Cassi Hempel.  We recently went on a trip to Detroit to Children’s Hospital Michigan with our Mom, Aunt and Grandma to have PET scans done on our brains. We are suffering from a rare and progressive neurological disease called Niemann Pick Type C. If we don’t do something about it, we’re going to lose our minds.

Our PET scans revealed that just like some Alzheimer’s patients, we have a glucose metabolism problem in the frontal lobes of our brains. This causes dementia. One of us (Cassi) has an inflammation spot in the middle of our brain, in the parietal lobe and basal ganglia area. This is an area of the brain where Parkinson’s patients are often impacted.

We ask that you take a moment to learn more about us and our fight against NPC. We have posted our brain videos, report and scans for the world to see.  We hope that through a view into our brains, we can bring answers and treatments not only for ourselves but for others who suffer from neurological conditions of all types.

Watch our Brain Video

Read our Brain Report

Look At Our PET Scans
Glucose FDG Addi
Glucose FDG Cassi
PK Addi
PK Cassi

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